HERITAGE ALLIANCE · DATA & KNOWLEDGE

Governance & Protection

Reference governance and protection measures from the source portal. Their inclusion explains the design; it does not verify deployment, certification or compliance at Heritage.

Explore the sections below

Governance Framework

Data stewardship

Define source-institution custodians, coordination responsibilities and review of stewardship decisions.

Policies and procedures

Document data classification, access decisions, retention and incident handling.

Transparency and accountability

Maintain clear catalogue metadata, decision records and stakeholder communication.

Technical governance

Align access controls, audit records and federated architecture with the agreed policies.

Data Protection Measures

The source lists the following measures. Heritage implementation and coverage require evidence before they can be presented as established controls.

Technical measures

  • Encryption in transit and AES-256 encryption at rest are source-stated controls.
  • Multi-factor authentication, role-based access and audit trails are source-stated controls.
  • Security assessments should test the actual deployed environment.

Organisational measures

  • Training and confidentiality arrangements.
  • Documented data handling and incident reporting.
  • Compliance reviews and a responsible data-protection contact.
  • Confirm whether a formally appointed data protection officer is required and in place.

Privacy-Preserving Technologies

Techniques described by the source include anonymisation or pseudonymisation, differential privacy, synthetic training data, federated learning, secure multiparty computation and disclosure-risk assessment. Choose and validate suitable methods for the actual data and purpose; no universal anonymity guarantee is implied.

Compliance and assurance

The source presents GDPR and OHDSI/OMOP compliance, with ISO 27001 and HIPAA alignment. No linked certification, independent audit or Heritage applicability evidence was found. These source statements are not reproduced as Heritage badges. Ask for the relevant policy, audit scope or institutional evidence before relying on a claim.

Questions about governance?

Contact Heritage to confirm the responsible institution and the requirements applicable to your proposed use.

Architecture diagram